Articles on eating disorders, insurance issues, legal issues, mental health
Tuesday, July 25, 2017
Insurance Industry - In League Behind the Mask (Part One)
Wednesday, May 31, 2017
The Morgan Foundation Resolution 2017
On Sunday, May 28, 2017, seven months to the day that Morgan Dunn's life was ripped away by an eating disorder, the 85th Legislature for the State of Texas stood tall and spoke as one. In this resolution, which is being signed by all members of the House of Representatives, they recognized The Morgan Foundation, commemorated the life of Morgan Dunn, and congratulated the foundation for the on-going work, in her name, to battle eating disorders.
The journey to save lives, to bring greater awareness, to have fair and balanced laws passed has just begun. And we will be beset by forces which will seek to wear us down, to get our mission off track, and who would protect the status quo of ignorance and isolationism as more Warrior Angels are claimed every day.
We will not be deterred.
Our voices will rise as one.
The Morgan Foundation Resolution Being Adopted
Thursday, May 18, 2017
TEDx - TO KILL THE MONSTER - EMPOWERED TREATMENT FOR EATING DISORDERS
We need to educate, to inform and yes, to inspire in this never ending fight.
Wednesday, May 17, 2017
Going Down in Flames: An Autopsy on Texas House Bill 3891 (A bill on eating disorders)
Texas House Bill 3891 was sponsored by the well-respected, venerable Texas State Congressman Garnet F. Coleman. Representative Coleman has served in the Texas House of Representatives since 1991 and is a champion of bills impacting mental health issues in the State of Texas. As he has done in past sessions, he filed a bill addressing eating disorders, House Bill 3891. This bill was designed to address and correct deficiencies in the insurance industry and the manner in which eating disorders are handled by insurance companies.
The Bill was dead before it was even filed.
The two main components of HB 3891 were: (1). In conducting a utilization review of treatment for eating disorders, the insurer, in addition to taking into account other factors, was required to consider the practice guidelines set forth by the American Psychiatric Association, and; (2). The insurer, once it approves a claim under its policy, could only conduct a "utilization" review not more than once every six months unless the treating health professional agreed that a more frequent review was necessary.
In layperson's terminology, HB 3891 mandated inclusion of language in insurance companies' group policies that the insurance companies fought against tooth and nail, and limited their ability to "step down" or terminate coverage to once every six months. This necessarily would have resulted in conceivably, hundreds of millions of dollars in additional exposure and expense to the insurance industry. With this financial atomic bomb hovering over its head, the insurance industry marshaled its lobbyists, organizations and influential politicians and although the industry "allowed" the bill to get out of the Public Health Committee, the bill died at the stroke of midnight, Thursday, May 11, 2017 without the House of Representatives debating the bill or voting on it.
The groups who publicly opposed the bill were; The National Federation of Independent Business, Texas Association of Business and, the Texas Association of Health Plans ("TAHP"). The TAHP has been in existence since 1987 and is the statewide trade association representing private health insurers, health maintenance organizations and other related health care entities operating in Texas. With regard to HB 3891, the TAHP's position was, "This bill violates our free market and limited government principles by mandating private insurers offer certain coverage. It is not a role of government to regulate an agreed upon contract between any private entity and a consumer. For these reasons, we oppose HB 3891." With this strong, united opposition, the eating disorder industry and community were facing an overwhelming mountain to climb.
The groups who publicly supported the bill were ... The National Alliance of Mental Illness (NAMI) Texas and ... [insert crickets chirping here] The Eating Disorder Coalition did not. (albeit, they focus their attention at the federal level.) The National Eating Disorder Association did not. The National Association of Anorexia Nervosa did not. No eating disorder recovery hospital, residential program, doctors' association, or counseling association stepped to the plate to be heard. The Texas Medical Association did not lend their considerable influence. No family based foundation attempted to rally other foundations to become involved. No influential corporate leader testified on the bill's behalf. A bill that would have revolutionized the eating disorder industry, a bill that would have brought so much hope to those victims suffering from eating disorders was left floundering, to go down to certain defeat.
HB 3891 was filed on March 10, 2017. This date is significant because this was the last possible date that a bill could be filed and still be considered during this legislative session. This late filing indicates the bill was more of an afterthought instead of a ground breaking piece of legislation that had a likelihood of success. In fact, the bill could have been filed as early as November 14, 2016. Approximately 400 other bills were filed on that date. Former speaker of the Texas House, Representative Tom Craddick stated that the early filing of bills helps because it increases the likelihood of obtaining an early hearing date on the bill while increases awareness and support of the bill. Even Representative Coleman stated that early filing of bills can give advocates something to organize around. So, why was this crucially important bill filed on the last possible day?
That fault lies with us ... the eating disorder community and the eating disorder industry. I had previously opined that the eating disorder industry and community is beset by parochialism, that it is a fractured and fragmented community whose "silo mentality" is merely making noise and no unified, powerful voice is speaking clearly and passionately articulating a vision that will result in saving lives. Is there any better proof than Tx HB 3891? The eating disorder industry continues to look inward, seemingly more concerned about protecting its "proprietary secrets" and desire for personal glory than in collaborating on a much needed broad-based initiative designed to bring assistance to all persons suffering from this disease. So, what can the eating disorder community do to insure that bills like Tx HB 3891 do not become status quo?
First, successful passage of a future bill (after the current session adjourns at the end of May 2017, the next session does not start until January 2019) begins today. It is comparable to winning a championship in football. Championships are not won in January when the game is played. They are won when the hot, hard work is done the previous July and August when no one is looking. Today, the eating disorder industry and community must rally, collaborate and find a common cause to support.
Language of a realistic bill that has a chance of being passed into law must be generated now. A Republican co-sponsor of that bill, a person with vision and wisdom must be identified and approached. (Why Republican? Because they control the Texas senate, house and all powerful positions in Texas government). The groups who opposed Tx HB 3891 must be approached and in-depth discussions must be had about the new bill. Instead of being approached in an adversarial basis, those groups are approached in the spirit of cooperation, educating them about the statistics that we, in the eating disorder community know so well. We retain political activists and a lobbyist who has a history of success in pushing through the agendas of his/her clients. The eating disorder community MUST reach out to African-American and Hispanic schools, groups and communities to help educate and inform and include them in this cause against eating disorders. The family foundations who are hoping to find their mighty voice must be found and approached. So too must we include the Gay, Lesbian, Bi-Sexual and Transgender groups and communities in this fight. Eating disorders know no racial, ethnic or sexual identity discrimination. It kills without remorse across the spectrum. The medical industry which would benefit so much, financially and otherwise, by mandatory improvements in the manner by which the insurance industry reviews treatment decisions must be rallied to this cause. A financial analyst must be retained to give a realistic, accurate report on the financial impact on citizens of the State of Texas that this bill would have. A "white paper" must be generated immediately outlining where the eating disorder industry is and what critical changes need to be implemented.
If these steps are successfully implemented, then we will have the eating disorder community, the eating disorder industry, the medical community, the African-American community, the Hispanic community, the LGBT community, the Democratic party, a champion in the Republican party and the family foundations rallied behind one cause, with one purpose in mind... and the powerful insurance industry will be left isolated, alone facing the combined mighty voices of a people acting as one, a people who are single minded in their purpose and now who have power and influence. Now, the playing field is even. Now, we can go to powerful politicians in Austin with thousands of voices supporting us. We have our Army of Warrior Angels inspiring but now, they too will feel hope and strength knowing that their message is being heard.
IF we undertake these tasks. IF we are willing to do the hard work. IF we listen to our Army. Only then, can we implement real change. IF we commit ourselves. Our cause is righteous. Our cause is just. The only question remaining is, do we have the courage of our convictions?
Tuesday, April 18, 2017
Silence the Noise ... and Raise Their Mighty Voices
April 30, 2017 will mark the sixth month date marking the passing of my beloved daughter, Morgan. And, with regard to the eating disorder community, the reality of a fractured and fragmented community has been increasingly discovered. As the curtain is pulled back, we do not see one master wizard pulling the strings of the marionettes as all dance with swan like beauty to the tune of a wondrous symphony. To the contrary. When the curtain is pulled aside, we see instead, the fleeting images of numerous people competing for a place at the head of the table and whose combined voices create an ear-blistering, cacophony of sound which drowns out any type of unified or powerful message or vision.
Silo mentality is loosely defined as that mindset wherein divisions, organizations, departments or functions refuse to share information, resource and support to others. It occurs when persons, companies, centers or clinics conclude that it is not their responsibility to coordinate their activities ... or breakthroughs with peers or other groups. In fact, this "silo mentality," is so prevalent in business that it is assumed to be a fundamental problem of human nature. And as the noise continues, as silo mentality remains prevalent, our children, our loved ones, remain the victims as "the Monster" claims its hourly victims.
The eating disorder community is comprised of a number of clear and distinct entities. There are the research scientists. Those brilliant doctors and professors studying the most complex biological organ of them all, the brain. They look for clues or hints of the biological causes of eating disorders, genetic markers, any abnormalities which could give us insight into the disease. They are usually attached to a university and are spread throughout the United States and abroad. Then you have the medical doctors who specialize in diagnosing and treating eating disorders. Their task is equally daunting. They must recognize the early signs of eating disorders, stay current with the latest alleged "breakthrough medication" from the pharmaceutical industry, educate the patient and the family, and hope they caught the Monster in time before it is too ingrained in the victim and the home.
There is the pharmaceutical industry who has never recognized an illness or disease that they, in some way, can't make better and who operate in corporate secrecy guarding their proprietary information with Mossad like efficiency. Then, we have the residential treatment centers spread throughout the United States and abroad. Each treatment center is subject to the whims of their owners and each promising that in some manner, their treatment protocol is the best, is the most adaptive. Then, we have the counselors and counseling centers whose professionals have been trained to recognize and in some manner, treat eating disorders. Their number throughout the United States alone is legion. We can also include those foundations, both profit and non-profit, which were started largely by persons who have survived the Monster and wish to spread awareness. Finally, there are the family foundations. These are usually started by those families who were victimized by the Monster when their loved one was ripped from this earth. Those foundations are meant to help the family in their grieving process, spread awareness (usually locally) and to raise funds for this cause. And, more often than not, those family foundations, after a few years, weaken and fall as the enormity of the task, the lack of long term planning, the difficulty of the road and the obstacles placed before them overwhelm their sensitivities and wear them down.
Each of those entities are speaking their own truth. Each of those entities are speaking about their strengths. Some of those entities are merely crying out in despair. Some of those voices are reinforced by the belief that they will be the next Jonas Salk, or Louis Pasteur or Walter Reed. Some of those voices are talking about their state of the art programs. And some of those voices are just wailing in despair, beset by grief. And the noise remains deafening, loud, disjointed and unintelligible. And all the while, the Monster continues to laugh and claims its hourly victims.
The Noise must stop because the carnage is not.
A message must be delivered. That message must be delivered to each state house in the Republic. That message must be delivered to each doctor and to each hospital. That message must be delivered to each school and to each parent. That message must be delivered to the White House and to Congress. That message must be delivered to each city hall. That message must be delivered from east coast to west coast. That message must be delivered to those nations near and far.
And, that message does not, and is not, coming from us. That message is coming from those voices who have been silenced. That message is coming from our daughters and our sons, our brothers and our sisters, our mothers and fathers, our loved ones. That message is coming from that Army of Warrior Angels who were ripped away from our loving arms by the Monster. That Army of Warrior Angels are unified as one, their voices are in harmony. Their resolve is irresolute. That Army of Warrior Angels are standing, arms linked together with one powerful purpose. Their voices are a mighty roar, loud and clear. And we have the absolute and inalienable duty to learn how to listen, heed and spread their message.
Their message? The time to unite is now. The time to collaborate is now. The eating disorder community must rise above its petty differences, its pride, its "silo mentality," its desire to glorify itself separately. We must speak as one, with all of the strength, power and passion of our Army of Warrior Angels and tell the world that the Monster is among us ripping a life from us every 62 minutes. For if we do unite, if we do educate and inform, if we research as one, speak as one, act as one, we can cage and control the Monster. We can save lives. Our Army of Warrior Angels expects and demands nothing less. We honor them by heeding them. We honor them by uniting to save precious lives.
Saturday, February 25, 2017
Local CBS Station Shines a Light on Eating Disorders
Thank you to our Dallas affiliate of CBS for this piece on eating disorders. Since February was Eating Disorder Awareness Month in Texas and the last week in February is recognized as national eating disorder awareness week, knowledge is power.
Monday, February 6, 2017
March 1, 2017 ... A Night with the Experts
Morgan often referred to us as “twins.” She had that joyous spirit that caught people’s attention and when she walked into a room, people knew she was there. At her “Celebration of Life,” there were a number of young women who attended and who have since written to me telling me how Morgan had saved their lives … that she was a bright light for them and brought them hope. And then, things began to happen. And a true journey in life was presented to me seemingly by coincidence, or fate or karma. But, a very poignant statement was made just yesterday by the pastor at the church I now attend when he said, “When you have found your purpose in life, God finds a way of making it happen.”
In the past three (3) months, I started the first Texas Chapter of Project HEAL, a non-profit foundation based in New York specializing in eating disorders. You can google it: Project HEAL – North Texas Chapter. I have also been accepted to give a TEDx talk in April at the University of Texas at Dallas. The Dallas Children’s Theater Center is presenting a play beginning this week entitled, “Eat … It’s Not About Food.” I may be speaking to attendees after at least one of the performances as an expert in the field.
But of greater import, is that on behalf of Project HEAL - North Texas Chapter, I have partnered with a non-profit foundation called The Elisa Project here in the Dallas area to present a seminar. The Executive Director of The Elisa Project is the incredible Kimberly Martinez. I have convinced, begged, pleaded, and/or threatened three (3) of the foremost experts on eating disorders in the State of Texas to appear on March 1, 2017 from 6:00 – 8:00 p.m. on the campus of the University of Texas at Dallas to speak for 2 hours on eating disorders. These experts are:Dr. Carrie McAdams from UT Southwestern;
Dr. Stephanie Setliff from Eating Recovery Center of Dallas;
Dr. Dana Rubin-Remer from Girls to Women Health and Wellness Clinic.
This event is free to the public. Doctors, counselors, teachers, parents, students are all welcome. We hope to have a crowd of at least 300 attending.
This seminar is being conducted during the heart of eating disorder awareness week and at the end of Eating Disorder Awareness Month in Texas. And as far as my research has found, nothing like this has ever been done in the United States. And since we are in Texas, I firmly believe in the saying, “Go Big or Go Home!”
As such, I am trying to arrange to have it simulcast on the internet and perhaps a local cable station as well. I have met a person who does part-time PR for the Mark Cuban Companies with ties in the broadcast industry. She can get this event the publicity it needs. Promotional material, a website and other miscellaneous costs will be incurred as well.
This is where you come in. I could have gone the gofundme route. But, since I partnered with The Elisa Project, and since they are a 501(c)(3) organization, we decided to simply use their donation window. We have the costs targeted at around $15,000.00. Any amount you donate is much needed and is so appreciated! I have embedded the donation page for The Elisa Project, or you can contact them directly by mail, or however you wish to donate. Their Tax ID Number is 75-2828903. Of course, if needed, I can get you their IRS letter of determination. In your donation, please put it is for the March 1 event or “Night of the Experts.”
http://theelisaproject.org/donate
You may be asking yourself, “why should I donate to this cause? It’s just an eating disorder… and that is just a rich little white girl’s illness.” Now, I could inundate you with shocking statistics, but instead I will just give you two statistics:
1. Eating disorders have the highest mortality rate of any mental illness.
2. Every sixty-two (62) minutes, someone dies as a direct result of an eating disorder.
You read that correctly. EVERY SIXTY-TWO (62) MINUTES, SOMEONE DIES AS A DIRECT RESULT OF AN EATING DISORDER. My beloved daughter became one of those statistics. And I want to help prevent other dads from having to sit in a hospital room, holding their daughter’s hand for the last time as her last breath of life leaves her forever. And with that last breath of life, so too does a part of his soul leave.
Finally, right after Morgan passed away, I could almost hear the Devil laughing as he whispered in my ear, “You are not strong enough to withstand the coming storm.” Now, I am whispering in the Devil’s ear, “I am the storm.”
Help us save lives ... one precious life at a time. And do NOT let your loved one be that next statistic.
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